Paediatric Charity

Hughes Travels

HOLIDAYING AFTER TRAUMA

Travelling was always a major part of mine and Ian’s lives. We prioritised seeing new places,…


GIVE IT HEART, GIVE IT MIND, GIVE IT SOUL, DON'T STOP!

I am sitting in peace and quiet for the first time in a very long time. This past weekend was full…


IF YOU GET TIRED, LEARN TO REST NOT TO QUIT

The boys and I have settled really well in Copenhagen but a tiredness has also descended on me. I…


FEELING LUCKY AT CHRISTMAS

It’s come round to Christmas already and this is our first since Milo died. I miss Milo every…


REGRET IS SCARIER THAN CHANGE

I can’t sleep. It is rare that I can’t sleep, even with all the worries of illness throughout time,…


Milo Apr 2021

When All We Do is still Not Enough

Pain is a subjective thing I guess. People talk about the most painful thing that’s ever happened…


SCANXIETY

I never knew what scanxiety was until last year when Milo started treatment. When Oscar was…


ABOUT USING THE F WORD

Something I don’t often talk about is anger. Brain tumours are different from other cancer in many…


FEAR TAKES THE JOY OUT OF LIFE

This is the first time I have written in over a year and a half. Ian was diagnosed with a brain…