Oscar Hughes

18 Years

    I don’t think I have ever felt more alone than I do right now. I shouldn’t as I have…


GIVE IT HEART, GIVE IT MIND, GIVE IT SOUL, DON'T STOP!

I am sitting in peace and quiet for the first time in a very long time. This past weekend was full…


IF YOU GET TIRED, LEARN TO REST NOT TO QUIT

The boys and I have settled really well in Copenhagen but a tiredness has also descended on me. I…


FEELING LUCKY AT CHRISTMAS

It’s come round to Christmas already and this is our first since Milo died. I miss Milo every…


REGRET IS SCARIER THAN CHANGE

I can’t sleep. It is rare that I can’t sleep, even with all the worries of illness throughout time,…


Milo Apr 2021

When All We Do is still Not Enough

Pain is a subjective thing I guess. People talk about the most painful thing that’s ever happened…


SCANXIETY

I never knew what scanxiety was until last year when Milo started treatment. When Oscar was…


ABOUT USING THE F WORD

Something I don’t often talk about is anger. Brain tumours are different from other cancer in many…


Walks to the park

Often when I walk towards the park from our home I am reminded of Oscar’s last trip to the park.…


Oscar 18 Feb 2013

MAKING A DIFFERENCE

We’ve had so many proud moments since we set up OSCAR’s Paediatric Brain Tumour Charity, but today…