Tom Daley and Marie Hughes

The Brain Tumour Charity's Five Year Strategy

I have decided to bite the bullet, throw away my fear of laying out my grief and start writing about losing my beautiful son – undeniably the only event in my life that has ever thrown me out of kilter and made me question everything that I do in life. It’s the death of my child that has done that; the illness, the brain tumour – that was all fightable and I could stay in control... for a while.

The death of Oscar is irreversible. My 9 year old will never hug me again, never laugh, never stubbornly argue with me and never play with his brothers again. He will not meet his new little brother in September and his little brother will never meet him. It will be for us; his mum, his dad and his two brothers; to ensure that Oscar’s memory is kept alive. It is ironic to even utter those words and still incomprehensible – Oscar dying surely is not real, maybe we can turn back time, maybe if I did something different, if we all did it differently, saw it earlier, had other treatments, maybe turned back the clock long enough for it never to happen... ?

This is the reason why I am so passionate about our charity. Sadly Oscar’s story is not unusual – there are so many families out there going through the same fight. While some of these children will survive, their quality of life is so vastly reduced. We set up the charity in Oscar’s name because we want to help find better treatments. This is why we have partnered with The Brain Tumour Charity and in particular why we fully support their HeadSmart campaign.

It is because of our partnership with The Brain Tumour Charity that our Chair, Sharon Reid, and I were invited to the launch of their Five Year Strategy. It is an ambitious strategy which highlights the need for earlier diagnosis and better treatment not only for survival but for a good quality of life after diagnosis and treatment.

To read more about the Strategy please follow this link:
http://www.thebraintumourcharity.org/about-us/defeating-brain-tumours

OSCAR’s PBTC aims to fully support this strategy, feeding into it with our main emphasis as always on children and young adults. We may not change what happened to Oscar, but we will be part of changing the direction of brain tumour treatments for other children.

Marie


Manchester Bike Ride by Jeff Farnworth

Jeff Farnworth did his Manchester Bike Ride for Oscar's PBTC on Sunday.
He raised £340 and counting, and he had an argument with some tram tracks on his way to the start of the race (he lost the argument!)
Check out his video here:

Get Active For Oscar 2015

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Mr. M & year 6
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Rugby
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Marius Barnard teaching tennis
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Young tennis players on the court
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Time for some hockey
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and Rugby
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Marius and Dave from David LLoyd on the tennis courts
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Proud medal winner
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Girls tackling rugby
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tennis in the rain
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tennis skills
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Paula North teaching bootcamp
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The young ones with footballs
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concentrated tennis player
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Hockey
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Hockey skills
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The young ones and rugby
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Hockey skills
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The art of Golf
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York City FC teaching football
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Paula North putting the young ones through their paces
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Dave Scoreby from Discover Soccer teaching the little ones some skills
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Multi sports
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York City FC camp
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York City FC camp
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar"
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar", Q&A time for the kids
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar", Q&A time for the kids
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar"
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar"
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Excited sports kids!

Dunnington School remembers Oscar

Dunnington School remembers Oscar

HUNDREDS of children at a York primary school have taken part in a sporting afternoon in memory of a sports-crazy pupil who died of a brain tumour.

York City goalkeeper Michael Ingham launched Get Active For Oscar yesterday afternoon at Dunnington Primary School, the school attended by footballer and tennis player Oscar Hughes until his death last year, aged nine.

The fun afternoon was an opportunity for the whole school to experience eight different sports, including hockey, football, tennis, rugby and a fitness bootcamp, and it is set to become an annual event.

Read more on the York Press.


Celebs including David Walliams, Robin van Persie, Dickie Bird and Boris Johnson rally to help York charity

Celebs including David Walliams, Robin van Persie, Dickie Bird and Boris Johnson rally to help York charity

TWO major events are being planned at a York school in memory of a pupil who died from a brain tumour.

Year six pupils at Dunnington Primary School, which was attended by Oscar Hughes, have written to famous people to appeal for items to sell at an auction in aid of OSCAR’s (Ongoing Support, Care And Research) Paediatric Brain Tumour Charity.

Read more on the York Press.