The Major Series 2015

THE MAJOR SERIES NORTH

Last year we had a number of runners in the Major Series North running for the charity. The day was so much fun that we’ve decided to do it again - on Sunday March 20th 2016 at Bramham Park, Leeds. We have over 80 people already confirmed to do the 10k run for us, but we want more.

Brand new for 2016, the course will feature surprise ‘concept zones’ which will immerse you in awesome military themes. You’ll be transported off into another world, as your senses are bombarded with smoke, explosions, unexpected smells, sounds or music.

More info on the obstacles here https://www.britmilfit.com/major-series/events/north/ but suffice to say you’ll get very wet, very muddy and have a lot of fun!

Although it’s a 10k run, the obstacles in between the running mean that you don’t need to be able to run a full 10k. Last year we had people walk the whole distance. How you tackle the course is entirely up to you – race your friends to see who can finish first, take your time and enjoy the view, or do it with a group of friends at your own pace. It’ll be lots of fun however you approach it.

The charity will cover your cost of entry (usually £45) and you’ll receive a winner’s medal, OSCAR’s PBTC t-shirt to run in as well as a Major Series t-shirt to get changed into after. All we ask is that you try raise enough money to at least cover the cost of your entry.

If you want to get involved in this brilliant event (over 17s only) email

marie@oscarspbtc.org


Ian Pryer presents award to Marie Hughes

WHAT A NIGHT!

Last night I wrapped up my baby and took him out on the town for his first night out - it was a night I just couldn’t miss. My friends, all trustees of the charity too, joined Milo and I, which turned out brilliantly for me as it meant I could sit back and relax whilst sending them off walking the pram after feeds or rocking Milo to the clapping and music. As always they were right there next to me at what turned out to be a very emotional and inspirational evening.

We were invited to York Racecourse to celebrate “York’s unsung heroes” and I was up for an award as Charity Fundraiser of the Year. I am pleased to say I won the award, but I can’t take all the credit. The ceremony was for Community Pride and that is very poignant, as what I have been part of achieving could not have been done without the fantastic community we have around us. We have friends, family and businesses around us who all support us and I dedicate this award to all of you.

The work I do with the charity would not be possible without everyone chipping in, be it as a friend for me to run things by; trustees with ideas, hard work and support; fundraisers at various events; supporters showing that they believe in the charity by donating; family giving time and encouragement; or businesses showing their support and creating awareness of us.
However, as with everything I do these days, there is always the bittersweet twist to it. How amazing to be here and be part of this, but how sad that Oscar isn’t standing next to me and doing this with me. Two years ago, he won Child of the Year at these same awards for his fundraising efforts to help other children in the same situation as him, and now we all continue this in his spirit. Please read through the nomination letter below that was sent to the Community Pride committee – the person who nominated me knows me well and has captured the inspiration that was Oscar!!

MARIE’S NOMINATION LETTER

Marie Hughes lost her son Oscar to a brain tumour last year when he was just 9 years old. Oscar was diagnosed in February 2013, just before his 8th birthday. Following an operation to remove the tumour, Oscar had to undergo a difficult and gruelling six weeks of daily chemotherapy and radiotherapy, and a further 12 months of chemotherapy.
In March 2014, as he was nearing the end of his treatment, Oscar relapsed. There was a small chance of getting him onto a trial that could have saved his life so Oscar’s family and friends, led by Marie, launched an appeal to raise money. It brought in £40,000 in less than a fortnight. Sadly Oscar died in early May, but since his death Marie has devoted her time to setting up a charity in his name. The charity aims to fund much needed research into paediatric brain tumours. It’s called OSCAR’s (Ongoing Support Care And Research) Paediatric Brain Tumour Charity (www.oscarspbtc.org) and it launched in November 2014, just over six months after Oscar died. In under a year, Marie tripled the £40,000 to £120,000.
The charity will partner with national charities including The Brain Tumour Charity, as well as local Yorkshire cancer organisations, to fund research that is looking to find a cure and also less devastating forms of treatment for all children who are diagnosed. Marie announced the charity’s first major research project in April this year, a partnership with The Brain Tumour Charity and Cancer Research UK, which will look at delivering chemotherapy drugs directly into the brains of children with recurrent tumours, rather than orally or intravenously as usually happens.
While the purpose of the charity is to raise money towards research into paediatric brain tumours, Marie has also worked hard to ensure that the way the charity raises money is fun, innovative and also involves children. It was important to Oscar, even while he was going through chemotherapy, that he continued to play sports and show his friends and his two brothers the importance of exercise. The fundraising and awareness building methods that Marie is using ensure that Oscar’s spirit is at the heart of everything the charity does.
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Ian Pryer presents award to Marie Hughes
Ian Pryer presents award to Marie Hughes
Community Fundraiser of the Year 2015
Community Fundraiser of the Year 2015

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Community Fundraiser of the Year 2015
Community Fundraiser of the Year 2015
Community Fundraiser of the Year 2015
Community Fundraiser of the Year 2015
Community Pride Awards
Community Pride Awards

You don't have to live forever, you just have to live

I have been nervous for about six months now - this little life I have been feeling inside me would be joining our family, but it is a broken family. No amount of pushing for new happiness can repair the loss we feel. Is it unfair to an innocent beautiful baby to come into this. And how would Oscar feel? Yes, I know it sounds silly, but I still wonder if Oscar knew what we were doing, would it upset him, make him happy, is it fair to him? And therein lies the nervousness and uncertainty. Because how do you bring another child into this world whilst still grieving and missing your dead child?

Turns out you just do. As with everything else in our life our family chooses to just do and get on with it, something I am immensely proud of. You see this is most definitely in Oscar's spirit. Oscar was spectacular in his approach to life: just keep going, don't question everything, give it all you've got.

So it is with indescribable pleasure and joy we welcomed our baby boy into this world last month. He may have entered a somewhat broken family, but he will learn with the rest of us to take pleasure and joy in all that he can, whilst trying to deal with the rest of us handling the overwhelming sadness of a boy who would once again have taken on the big brother role with his magical smile.

Our little Milo is missing out on the beautiful experience of having Oscar sing to him, make jokes with him, play spaceships with him, teach him football and tennis and so much more. But he has his other brothers and us. We are Oscar's family and we will keep being who we are, keep pushing for a joyful life and it turns out that nothing can make nervousness and fear disappear like a cuddle and a look into a newborn baby's eyes.


The Go Gold Project

Why Going Gold For Childhood Cancer Month Matters

September sees the start of Childhood Cancer Month - this wasn’t even something I was aware of until a couple of years ago. September also sees the start of the new school term and the end of the school holidays, and this summer has been no different to us as a family - we have gone to be with relatives as we usually do and the kids have loved playing with their cousins.

For Ian, Lucas, Sebastian and I, Oscar is missing every day in everything we do. But Oscar was never physically present with our wider family every day as we live so far apart; so although he was a large presence in all of our lives, I feel (and hope) like there is a little respite for them because life is able to go on a little bit more easily. The holidays make that difficult for our wider family as there will always be one missing.

I guess I am trying to understand the wider impact Oscar’s death has had. It is not only us still grieving but our families, and much more so when we “hit them” with his absence. Grandparents, uncles, aunties, cousins, great grandparents…

I spoke with my 92 year old grandmother a number of times over the holidays - she is getting old and her memory is fading, so she asks the same things over and over again. She asks about my three children, their ages, their likes etc. Again I explain that Oscar is dead. She then asks me how it happened and again I explain about his brain tumour, treatment and relapse. Her response is always the same; how can you go through this Marie, how could this happen, how are the boys dealing with it?

After one of these conversations, the only thing I could think about was that I might have another 50 years to ask myself those same questions again and again and again.

The impact of childhood cancer is devastating on every level. Please join us in going Gold for Childhood Cancer in September. Raising awareness of the symptoms of this disease and funding more research is crucial.

http://gogoldproject.weebly.com/


Oscar Hughes race horse

The Oscar Hughes Race Horse

Here is a little sneak preview of a very exciting and novel way of support for our charity.

Local Malton trainers Julie Camacho and Steve Brown have very kindly bought a lovely race horse and named it after our son Oscar Hughes.

We went to see the horse yesterday with the whole family and although there will be much more information to come about this in the next month, we couldn’t help but give you a little look at the beauty.


Tom Daley and Marie Hughes

The Brain Tumour Charity's Five Year Strategy

I have decided to bite the bullet, throw away my fear of laying out my grief and start writing about losing my beautiful son – undeniably the only event in my life that has ever thrown me out of kilter and made me question everything that I do in life. It’s the death of my child that has done that; the illness, the brain tumour – that was all fightable and I could stay in control... for a while.

The death of Oscar is irreversible. My 9 year old will never hug me again, never laugh, never stubbornly argue with me and never play with his brothers again. He will not meet his new little brother in September and his little brother will never meet him. It will be for us; his mum, his dad and his two brothers; to ensure that Oscar’s memory is kept alive. It is ironic to even utter those words and still incomprehensible – Oscar dying surely is not real, maybe we can turn back time, maybe if I did something different, if we all did it differently, saw it earlier, had other treatments, maybe turned back the clock long enough for it never to happen... ?

This is the reason why I am so passionate about our charity. Sadly Oscar’s story is not unusual – there are so many families out there going through the same fight. While some of these children will survive, their quality of life is so vastly reduced. We set up the charity in Oscar’s name because we want to help find better treatments. This is why we have partnered with The Brain Tumour Charity and in particular why we fully support their HeadSmart campaign.

It is because of our partnership with The Brain Tumour Charity that our Chair, Sharon Reid, and I were invited to the launch of their Five Year Strategy. It is an ambitious strategy which highlights the need for earlier diagnosis and better treatment not only for survival but for a good quality of life after diagnosis and treatment.

To read more about the Strategy please follow this link:
http://www.thebraintumourcharity.org/about-us/defeating-brain-tumours

OSCAR’s PBTC aims to fully support this strategy, feeding into it with our main emphasis as always on children and young adults. We may not change what happened to Oscar, but we will be part of changing the direction of brain tumour treatments for other children.

Marie


Manchester Bike Ride by Jeff Farnworth

Jeff Farnworth did his Manchester Bike Ride for Oscar's PBTC on Sunday.
He raised £340 and counting, and he had an argument with some tram tracks on his way to the start of the race (he lost the argument!)
Check out his video here:

Get Active For Oscar 2015

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Mr. M & year 6
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Rugby
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Marius Barnard teaching tennis
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Young tennis players on the court
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Time for some hockey
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and Rugby
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Marius and Dave from David LLoyd on the tennis courts
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Proud medal winner
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Girls tackling rugby
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tennis in the rain
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tennis skills
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Paula North teaching bootcamp
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The young ones with footballs
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concentrated tennis player
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Hockey
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Hockey skills
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The young ones and rugby
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Hockey skills
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The art of Golf
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York City FC teaching football
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Paula North putting the young ones through their paces
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Dave Scoreby from Discover Soccer teaching the little ones some skills
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Multi sports
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York City FC camp
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York City FC camp
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar"
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar", Q&A time for the kids
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar", Q&A time for the kids
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar"
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Michael Ingham, Goalkeeper for York City FC launching "Get Active for Oscar"
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Excited sports kids!

Dunnington School remembers Oscar

Dunnington School remembers Oscar

HUNDREDS of children at a York primary school have taken part in a sporting afternoon in memory of a sports-crazy pupil who died of a brain tumour.

York City goalkeeper Michael Ingham launched Get Active For Oscar yesterday afternoon at Dunnington Primary School, the school attended by footballer and tennis player Oscar Hughes until his death last year, aged nine.

The fun afternoon was an opportunity for the whole school to experience eight different sports, including hockey, football, tennis, rugby and a fitness bootcamp, and it is set to become an annual event.

Read more on the York Press.


Celebs including David Walliams, Robin van Persie, Dickie Bird and Boris Johnson rally to help York charity

Celebs including David Walliams, Robin van Persie, Dickie Bird and Boris Johnson rally to help York charity

TWO major events are being planned at a York school in memory of a pupil who died from a brain tumour.

Year six pupils at Dunnington Primary School, which was attended by Oscar Hughes, have written to famous people to appeal for items to sell at an auction in aid of OSCAR’s (Ongoing Support, Care And Research) Paediatric Brain Tumour Charity.

Read more on the York Press.